Emotions run high and often the question of “why?” enters the mind. The world of Autism is fascinating, it is frustrating, it is filled with promise!
Being a parent of a child who seemed to be a typical child for the first 18-24 months, it was heart breaking when “little quirks” began to appear. My child was content to do things or watch the same program for hours, he enjoyed being around adults, toe walked, was a VERY picky eater, black and white concrete thinker, easily overwhelmed and would melt down- crying, screaming and striking out. He was also extremely anxious. Amazingly even with all these struggles he still smiled, asked questions and woke each morning looking forward to the day. I longed to hold my child, rock and enjoy his company instead of hold him for his own safety. I often told myself, “If I could just peek inside, see through the window”, maybe I would be able to understand and be a better parent.
I was a special education teacher and yet it wasn’t for many years that I understood what all was going on. Through the years we sought support: OT, PT, communication therapy, counseling and pharmaceutical interventions. I read a lot and observed. As the years progressed and with the help and support of amazing OT’s, PT’s, SLP’s and teachers we have made it to the final years of high school. I would have never imaged, but always hoped that we would get to this point. Truly today my child’s anxiety is manageable, eating habits improved, he has the ability to know his own needs and share them, think and function with less rigidity, and participate in “regular” activities with his peers and adults. I now cry for very different reasons. I am no longer scared for what the future holds- I am hopeful. I am not sad for what we have gone through- I have grown in understanding and compassion. I cry because my family and those around us have been blessed. It really is about deciding whether the cup is half full or half empty.
Check out this amazing song and music video: https://youtu.be/cBOSr7JK8OA?list=PL075BE3078E117E4C
As a parent of a child on the Autism Spectrum, I tell you keep the faith, be patient, do what is right for your child and family, and know that even when you feel there is no one else struggling like you are, that you truly are not alone! It is no a race to the end, but a journey. Love unconditionally and help them build and live THEIR dreams. The future is bright, the sunshine just may come from a little different direction than we expected!
Autism is not curable, it’s what I call curbable, moldable, shapable. A person will always have tendencies, it is part of who they are, but can learn to adapt their needs and understand the world around them.
“Everyone has a mountain to climb and autism has not been my mountain, it has been my opportunity for victory.” – Dani Bowman